25 February 2010
Posted by Paul Anater at 9:46 PM
This is Layla Grace Marsh. She's a beautiful two-year-old in Texas. She's also got stage four neuroblastoma. Her mom's very active on the web and I was asked to write this blog post by Carmen Natschke from Decorating Diva and Christine Skaley from Pillow Throw Decor. Both of those women are terrific friends of this blog and so I want to pass along a story from them.
Layla was an otherwise normal baby until she developed abdominal pain at about 15 months of age. Her parents thought they were dealing with routine digestive problems but found out instead that their baby had stage four cancer. I cannot imagine how devastating such news would be.
Layla's mom is Shanna Marsh, who wrote the website Baby Wears Prada. Since Layla's diagnosis, Baby Wears Prada has morphed into a Facebook Fan Page. Shanna and her husband Ryan have also been keeping up the website Layla Grace. Their site serves as a way for them to document their daughter's life and as someone who writes into the ether on a daily basis, it's got to be a tremendous relief to have it as an outlet for their thoughts.
On a day when congressional leaders and the President of the US met to discuss the pressing need for healthcare reform, it's instructive to note that Layla is dying. Her family will not only have to deal with the death of their child, but also the medical bills not covered by their insurance. At this point, those bills are in excess of $100,000 and climbing.
Christine is coordinating a creative fundraiser through her blog and you can find all the details there. Please follow the link over to Pillow Throw Decor and count your blessings while you're waiting for the page to load.